No more CPAP! Lily was moved to the nasal cannula today, and she is doing wonderfully :) At two months, we're finally able to look at her - our beautiful, beautfiul girl. She is awake, alert, looking around the room - responding to our voices - we are overcome by happiness today, it is a huge step and a great sign that Lily's lungs are developing well. She is, without question, the strongest kid I know!
Her blood oxygen is in the mid 90s on about 30% oxygen - the cannula pressures are about 1/2 that of the CPAP, so she really is doing the breathing on her own now. The pressure is just there to push the oxygen alongisde the room air. Otherwise, in other good news - she had an eye test today, during which no abnormalities were seen. Her eyes are still premature, but nothing that isn't normal for babies at 33 weeks gestational age.
She is truly a miracle! Thank you all for the prayers, good wishes, positive energy sent Lily and our family's way. It has been of tremendous help these past eight weeks, has really helped us stay positive and hopeful. It really, truly feels like the light at the end of this long tunnel is fast approaching - we still have about a month, hopefully not more, left in this journey, and we remain very, very hopeful that this story will have the happy ending that is slowly (but surely) taking shape!
Also - a tremendous thank you to all who have donated, and continue to donate, in Lily's honor. In conjunction with Hillary's amazing help, we have now raised over $5,000 for Hailey's Hope Foundation and $2,500 for a similar foundation in Fairfield County called Tiny Miracles... truly amazing, we are so touched - it is for such a great cause - thank you all so, so much!
We are so happy that Lily is doing so well! God Bless!
ReplyDeleteI can't stop looking at your amazing little girls face - well done Lily and keep going :) a Beautiful photo and it is so much easier to have cuddles when they are off Cpap - Amy took 13 weeks to get off the ventilator so Lily is doing so well!!
ReplyDeleteI've been following along for a while now (I've only been able to check in every week or so) and every time it's been several days since I last checked, I am a little nervous as I wait for the page to load, but somehow I've always managed to time it on a good day for Lily and I breathe a sigh of relief as I read the first few words. This past break was a bit longer and I was so happy to find that she is doing so well. And I'm also amazed at how much her (and your) story has touched me that I feel compelled to keep checking back to make sure you all are OK! Lily is beautiful. Thank you for sharing the story with us and for keeping us all updated through all the ups and downs. Sending lots of good vibes to all of you!
ReplyDeleteOMG!! She is ADORABLE!! Way to go Lily!!! Whoo hoo!! So, so thrilled for you all. Keep up the good work little one!!
ReplyDeleteYea Lily! We are continuing to pray!
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