Monday, February 25, 2013

All good news!

Nothing but good news with this update! Lily has taken some great steps forward during the past few weeks - she is starting to explore with her hands, a huge milestone! She's grabbing at toys and pulling her bottle towards her mouth. She's building coordination and keeps herself entertained when she has a few things to explore with her hands.  She's vocalizing a lot more, starting to coo a lot, really just all fantastic things. She can recognize people - and she gives her physical therapist dirty looks from across the room! All in - apart from her PT sessions - she's a really, really happy baby :)

Having a blast pulling Addie's hair
The PT and stretching at home seem to be working well. PT once or twice a week, stretching at home 7-9 times a day. Recently we've noticed a lot less tightness in her hips, legs, ankles and arms which - all very, very good signs. We've been warned that the tightness could return, but the fact that it has dissipated is really great.

We've scheduled the MRI for March 19th, and we'll have results by the 28th. I hate the fact that she's going to have to be sedated for the procedure since she needs to be perfectly still. But it is what it is. Sara and I are taking the day off work to take her in.

Oh... great news - Lily's ROP (retinopathy of prematurity) has cleared up! Another miracle to add to the books.... another thing to be thankful for!

What else - she's been discharged from her endocrinologist! One less doctor is always a good thing. We're in the process of changing neurologists - the guy we've had since the hospital doesn't take insurance - any insurance. We're going to go in-network since we'll going to be tracking this hydrocephalus once every couple of months.

It has been a crazy ride, a really wild one - my head spins even thinking about last summer, to think how far she has come! She is hitting all of her milestones - I can't even begin to grasp how amazing, how miraculous that is. A huge thank you once again to everyone who's been following Lily's story and keeping her in your thoughts and prayers - here's proof they worked!