Good day for Lily! She's been on 25% oxygen throughout the day, just 4% above room air. Her ET tube needs to be suctioned out less frequently now, once every handful of hours instead of twice an hour, indicating. She lost about 50 grams last night, so the double dose of diuretic worked well. Tonight she gained it back, but nurses are saying that since she's back on breastmilk we should expect weight gain- but just not 90 grams at a time.
Doctors were able to increase her feed rate today, from 10 to 15 ml bolus feeds, which is good- half way to the 30ml feeds that she stopped last week!
Lily had to get another IV in her forehead today :( her veins keep collapsing, and her IVs have only lasted a day or so at best. The sooner she can get back to 30ml feeds the better... Once she is, they can take her off the electrolyte and fat emulsion (Gatorade) and she won't need to get stuck with so many IVs.
Although her lungs are looking much, much better (no collapse, only small spots of atelectasis), they're now saying lily has chronic lung disease (CLD) since she is still requiring ventilation and oxygen at 32weeks (her adjusted gestational age). They seem a little quick to slap a label on things, and I remind myself of the night I was told she had PVL.. which turned out to be nothing. Fact is, they probably wouldn't be calling it CLD if Lily hadn't gotten sick, and if she was still on CPAP. And CLD clears itself up over time, it's just a matter of how long. Hopefully they move her to the conventional vent tomorrow, and then hopefully CPAP before too long.
So, here's to boring days... I hope we can keep it boring until she comes home!
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