Day 73-79: Are we there yet?

Another couple of good days in a row! Lily is still working on moving to two bottles a day, but she's definitely getting better at her suck/swallow/breathe coordination. The thing is, she tires out and falls asleep about half-way through her feeds- it's the most work she's done in her entire life, literally! Both Sara and I have gotten to feed her, which was great! Feeding her is kind of a delicate balancing act... We have to watch for her cues that she needs a breather, or she desat's. Sometimes she will Brady, but she catches herself. Watching her heart rate drop from 160bpm to 90bpm is still very unnerving, though.

Sara and I can't wait to bring her home- we now know she will, indeed, come home! It is an indescribably good feeling. A month ago, we didn't know if we would ever bring her home... what a difference a month can make! We are getting the house ready- new stroller, baby clothes - finally! It looks like this story is going to have a happy ending after all :)

We just need to keep our fingers crossed - docs still won't start talk about going home, but the nurses say things like "get the CPR class out of the way", or "you'll be home before you know it" - such relieving things to hear!

Thanks you all again for the well wishes, prayers and good vibes sent Lily's way... as you can see- they workhe'she is, indeed, a miracle baby!